وقتی عشق، محدودیت را ازپای درمی آورد
شماره موبایلش را در گوشیام ثبت کردم تا صفحه اینستاگرامش را فالو کنم ولی در عین ناباوری هنوز از منزلشان خارج نشده بودم که پیام درخواست برای فالو کردن از سوی آیلر دارابی برایم ارسال شد. دختری 25 ساله که در هنگام تولد به دلیل نرسیدن اکسیژن کافی به سلولهای مغزی، بخشهایی از سلولهای مغزش از بین رفته بود که در اصطلاح پزشکی به آن cp میگویند. علی رقم همه محدودیتهایی که افراد، خانوادهها و حتی جامعه از cp شدن یک فرد متحمل میشوند اما آیلر با زیرکی ذاتی خود، مرز محدودیتها را شکسته است. باید با اینگونه افراد آشنا باشید تا بدانید چگونه وقتی پای عشق در خانواده درمیان باشد، کار با یارانه، مدیریت یک صفحه اینستاگرام و نقاشی با پا، میتواند تنها بخشی از هنرنماییهای افراد مبتلا به cp باشد. عشقی که در نگاه پدر و مادر آیلر به وفور موج میزند و مارا به تماشای نقاشیهای دختر هنرمند و خندانش در سرتاسر خانه فرا میخواند.
آیلر میتوانست به راحتی با پای خود بنویسد و با لب تاپ خود کار کند. آرشیو کارهایش را که خودش در فتوشاپ چیدمان کرده بود را در لبتابش نشانمان دهد. صفحه شخصی اینستاگرام آیلر جالب توجه است صفحه ای که خودش آن را مدیریت می کند، پست میگذارد، فالو می کند و به کامنتها پاسخ میدهد. در قسمت معرفی آن خود را طرفدار تعصبی مهدی مقدم، خواننده، میخواند و به قدری این طرفداری عمیق است که این خواننده به دیدارش می آید و حتی نقاشی چهره خودش را که توسط آیلر کشیده شده در صفحه اینستاگرامش به نمایش میگذارد. تسلط آیلر به تکنیکهای نقاشی چون آبرنگ، مداد رنگی، کولاژ و… که همگی را با پا انجام می داد برایمان عجیب جلوه میکرد!
میترا اعزازی، مادر آیلر، معتقد است که هیچگاه به دلیل cp بودن آیلر، او را مخفی نکرده و همیشه در جمع خانواده و در مهمانیهای مختلف حضور داشته است. نقاشی را از 12 سالگی شروع کرده بود اما طراوات و تازگی رنگها در آثارش خبر از دلگرمی عمیقی میداد که میتوان ریشهاش را در نگاه گرم پدر و مادر آیلر و حساسیت آنها در نگهداری آثار آیلر دید.
مادر آیلر به رقم گلههایی که از کاستیهای آموزشی، کمبود امکانات، نگاه های آزار دهنده افراد در سطح جامعه و بیتوجهی مسئولین به تامین امکانات برای این قشر از افراد جامعه داشت اما از حمایتهای خود و خواهر و برادر آیلر با شور و شوق صحبت میکند.
وی با بیان اینکه متاسفانه در شهرهای ما فضاسازی مناسب برای اینگونه افراد وجود ندارد، ادامه میدهد: سوادآموزی نیز برای آنها بسیار مشکل است و کمتر توسط مربیان مرتبط با این حوزه انجام میشود. به دلیل هیجان بالایی که در لحظات ابتدایی در مواجه با موضوعات جدید دارند، ارتباط گرفتن با آنها کمی سخت است و صبر و حوصله فراوانی میخواهد.
میترا اعزازی درباره چگونگی آموزش خواندن و نوشتن به آیلر تاکید میکند: بعضا ما ایرانیها کم صبر هستیم ولی باید این نکته را مدنظر داشت که این افراد تا زمانیکه هیجان زده هستند، آموزش نمیپذیرند و ابتدا باید 10دقیقه صبر کرد تا با مربی آشنا شود و آرام شود تا مطالب را از مربی دریافت کند. آموزش آیلر در مدارس نبوده و اکثر تواناییهایش را با بهره گیری از هوش خود و آموزش توسط خواهر و برادرش بدست آورده است.
وی درباره نحوه کنار آمدن خواهر و برادر آیلر با این موضوع میگوید: به برادر و خواهر آیلر گفتم، ببینید باید قبول کنیم که یکی از اعضای خانواده ما متفاوت است و به کمک همه ما نیاز دارد. باید دست به دست هم دهیم تا تمام تواناییهایش بروز و ظهور پیدا کند.
وی درباره کار با رایانه آیلر میگوید: از زمانی که برادرش لب تاب خرید، با بازی معروف قارچ خور شروع بکار با لبتاب کرد ولی کار بالب تاب به بازی ختم نشد و آیلر با دقت فراوان به کارهای برادرش توانست به بخش های مختلفی از جمله فوتوشاپ هم آشنا شود و در حد آماتور می تواند عکسها را در این نرم افزار ادیت کند.
شاید همین حمایتها است که باعث شده آیلر در کارنامه کاری خود چندین نمایشگاه نقاشی انفرادی و جمعی با دوستان هم نوع خود داشته باشد. شاید بتوان گفت در زمانه ای که افراد بدون هیچ توجیهی دست از کار و تلاش می کشند و از انجام کارهای روزمره خود به دلایل واهی عاجزند، آیلر، بی نظیر است؛ البته نه به دلیل توانایی هایش بلکه از این جهت که نا امیدی در نگاه او راه نداشت و نمونه عینی برای شکست محدودیتها و نمود توانمندیها بود!
گزارشی از عفت رضوی





I just sent this post to a bunch of my friends as I agree with most of what you’re saying here and the way you’ve presented it is awesome.
Hi, do have a e-newsletter? In the event you don’t definately should get on that piece…this web site is pure gold!
It sounds like you’re creating problems yourself by defining this as such a comprehensive, almost unknowable problem. Isn’t that self-defeating?
Glad to be one of many visitants on this amazing site : D.
Saw your material, and hope you publish more soon.
We can see that we need to develop policies to deal with this trend.
Transform your interiors with copper effect tiles, the perfect blend of style and durability. Our copper effect bathroom tiles bring spa-like warmth and elegance to wet areas, while the robust copper effect floor tiles add an industrial yet luxurious touch to living spaces. Crafted from premium porcelain, these copper look porcelain tiles capture the rich, oxidised beauty of real metal with all the benefits of easy maintenance, stain resistance, and long-lasting performance. Available in a striking 60×120 copper floor tiles format, they create a seamless, contemporary look with minimal grout lines, making them an ideal choice for modern homes and commercial projects alike.
I am glad to be one of the visitors on this great site (:, appreciate it for putting up.
I had fun reading this post. I want to see more on this subject.. Gives Thanks for writing this nice article.. Anyway, I’m going to subscribe to your rss and I wish you write great articles again soon.
Nice blog here! Also your web site loads up very fast! What host are you using? Can I get your affiliate link to your host? I wish my web site loaded up as fast as yours lol
It is perfect time to make some plans for the future and it is time to be happy. I’ve read this post and if I could I want to suggest you some interesting things or suggestions. Perhaps you can write next articles referring to this article. I wish to read more things about it!
We absolutely love your blog and find the majority of your post’s to be exactly what I’m looking for. Do you offer guest writers to write content to suit your needs? I wouldn’t mind composing a post or elaborating on a number of the subjects you write about here. Again, awesome weblog!
A colleague in the field told me to check out your website.
A neighbor of mine encouraged me to take a look at your blog site couple weeks ago, given that we both love similar stuff and I will need to say I am quite impressed.
Wow, amazing blog layout! How long have you been blogging for? you made blogging look easy. The overall look of your site is great, as well as the content!
Greetings… your blog is very interesting and beautifully written.
I can’t go into details, but I have to say its a good article!
Τα online καζίνο αποτελούν σήμερα μια από τις πιο δημοφιλείς μορφές ψυχαγωγίας στην Ελλάδα. Η αγάπη των Ελλήνων παικτών για αυτή τη μορφή διασκέδασης μεγαλώνει συνεχώς, και μαζί με αυτή την αύξηση, πολλαπλασιάζονται και οι επιλογές σε διαδικτυακά καζίνο. Αν θέλεις να βρεις τα καλύτερα και πιο ασφαλή καζίνο για να παίξεις, είναι σημαντικό να ξέρεις πώς να ξεχωρίζεις τις αξιόπιστες πλατφόρμες από τις υπόλοιπες. Στο παρακάτω άρθρο θα βρεις χρήσιμες πληροφορίες και συμβουλές για να κάνεις την καλύτερη επιλογή και να απολαύσεις το παιχνίδι με ασφάλεια και διασκέδαση.
Peculiar this blog is totaly unrelated to what I was searching for – – interesting to see you’re well indexed in the search engines.
Nice post.Very useful info specifically the last part 🙂 Thank you and good luck.
The post is absolutely great! Lots of great info and inspiration, both of which we all need! Also like to admire the time and effort you put into your blog and detailed information you offer! I will bookmark your website!
A neighbor of mine encouraged me to take a look at your blog site couple weeks ago, given that we both love similar stuff and I will need to say I am quite impressed.
What made you first develop an interest in this topic?
Hello there! I really enjoy reading your blog! If you keep making amazing posts like this I will come back every day to keep reading.
Nice read, I just passed this onto a colleague who was doing some research on that. And he just bought me lunch as I found it for him smile Therefore let me rephrase that: Thank you for lunch!
Awesome post. It’s so good to see someone taking the time to share this information
Simply want to say your article is as amazing. The clarity in your post is just great and i can assume you’re an expert on this subject. Fine with your permission allow me to grab your feed to keep up to date with forthcoming post. Thanks a million and please keep up the gratifying work.
I like what you have to offer. Keep up the good work!
Peculiar this blog is totaly unrelated to what I was searching for – – interesting to see you’re well indexed in the search engines.
I cannot thank you more than enough for the blogposts on your website. I know you set a lot of time and energy into these and truly hope you know how deeply I appreciate it. I hope I’ll do a similar thing person sooner or later.
The clarity in your post is just nice and I can tell you are an expert in the subject matter.
It’s continually awesome when you can not only be informed, but also entertained! I’m sure you had fun writing this article. Regards, Clotilde.
I am glad to be a visitor of this perfect blog !, appreciate it for this rare info!
Nice Post. It’s really a very good article. I noticed all your important points. Thanks.
I had highly recommend this blog to my good friend, it’s so good
Glad to be one of many visitants on this amazing site : D.
These are some of the most important issues we’ll face over the next few decades.
That’s some inspirational stuff. Never knew that opinions might be this varied. Thanks for all the enthusiasm to supply such helpful information here.
I imagine so. Very good stuff, I agree totally.
Thanks For This Blog, was added to my bookmarks.
Enjoyed reading through this, very good material. Thanks!
We need to build frameworks and funding mechanisms.
When we look at these issues, we know that they are the key ones for our time.
Dude.. I am not much into reading, but somehow I got to read lots of articles on your blog. Its amazing how interesting it is for me to visit you very often. –
Its like you read my mind! You seem to know a lot about this, like you wrote the book in it or something. I think that you can do with some pics to drive the message home a bit, but other than that, this is wonderful blog. A great read. I’ll certainly be back.
OK, you outline what is a big issue. But, can’t we develop more answers in the private sector?
Some truly nice stuff on this website , I like it.
Does it look like we’re in for a big ride here?
This will be helpful for my family.
Excellent read, I just passed this onto a colleague who was doing a little research on that. And he actually bought me lunch because I found it for him smile So let me rephrase that.|
This will be helpful for my family.
you may have an ideal blog here! would you prefer to make some invite posts on my blog?
I appreciate your work, thanks for all the great blog posts.
We’re developing a conference, and it looks like you would be a great speaker.
I was referred to this web site by my cousin. I’m not sure who has written this post, but you’ve really identified my problem. You’re wonderful! Thanks!
Great post. I was checking constantly this blog and I’m impressed! Very useful info specifically the last part 🙂 I care for such info much. I was looking for this certain information for a very long time. Thank you and good luck.
We are a group of volunteers and starting a new initiative in our community. Your blog provided us with valuable information to work on|.You have done a marvellous job!
I like your blog. It sounds every informative.
Amazing content on your website.
Best American Healthcare University offers CNA certification training classes Online. Train from anywhere in California. Complete the 160 hybrid course. Clinical hours are completed in person in a skilled nursing facility. This program is state approved. Remember certification only comes after the student successfully passes the state exam. You only need your phone for the online class and a google chrome browser. A computer is great, but not necessarily needed. 951 637 8332. Enroll now at https://www.bestamericanhealthed.com/online-cna-program
I think I will become a great follower.Just want to say your post is striking. The clarity in your post is simply striking and i can take for granted you are an expert on this subject.
Excellent read, I just passed this onto a colleague who was doing a little research on that. And he actually bought me lunch because I found it for him smile So let me rephrase that.|
of course like your web-site however you have to check the spelling on several of your posts. Many of them are rife with spelling problems and I find it very troublesome to tell the reality then again I will surely come back again.
The post is absolutely great! Lots of great info and inspiration, both of which we all need! Also like to admire the time and effort you put into your blog and detailed information you offer! I will bookmark your website!
I will share you blog with my sis.
Hi my family member! I want to say that this article is amazing, great written and include approximately all important infos. I’d like to see more posts like this .
Thanks for some other great post. Where else may anybody get that kind of information in such an ideal method of writing? I’ve a presentation next week, and I am at the look for such information.
Magnificent beat ! Can I be your apprentice? Just kidding!
This is something that will need all of our combined efforts to address.
Nice post.Very useful info specifically the last part 🙂 Thank you and good luck.
Thanks for a Interesting item; I enjoyed it very much. Regards Sang Magistrale
This is the wave – the big wave.
I just added this to my favorites. I truly love reading your posts. Tyvm!
Great info! Keep post great articles.
I like to spend my free time by scanning various internet resources. Today I came across your website and I found it has some of the most practical and helpful information I’ve seen.
It’s time for communities to rally.
I really believe you will do well in the future I appreciate everything you have added to my knowledge base.
Could not disagree with the main ideas. Wonder how things will develop over the coming years.
Hi, I just hopped over to your web-site through StumbleUpon. Not somthing I might typically browse, but I liked your views none the less. Thanks for making something worthy of reading through.
Substantially, the post is really the best on this laudable topic. I concur with your conclusions and will eagerly watch forward to your future updates.Just saying thanx will not just be enough, for the wonderful lucidity in your writing.
I love your blog. It looks every informative.
I wish I could craft such articles as this. Thank you very much.
This has to be one of my favorite posts! And on top of thats its also very helpful topic for newbies. thank a lot for the information!
I am glad to be one of the visitors on this great site (:, appreciate it for putting up.
I can’t go into details, but I have to say its a good article!
Glad to be one of several visitors on this awful internet site : D.
Substantially, the post is really the best on this laudable topic. I concur with your conclusions and will eagerly watch forward to your future updates.Just saying thanx will not just be enough, for the wonderful lucidity in your writing.
I’m partial to blogs and i actually respect your content. The article has actually peaks my interest. I am going to bookmark your site and preserve checking for new information.
Assume you are doing good linking to position you on the first pages of search engines.